Well.. Trevor ended up in the ICU unit this week.. He started to have Grand Mall Seizures, with Blood Pressure 244/180 at one point.
He got sent down to the IMC hospital on early Monday morning about 4:00 am after not being able to do anything here.. they started at the hospital here in town at 2:00 am
He was in ICU until yesterday and now in a regular room.. They have done major drug changes and increases to help the bp and he has to go at least 24 hours without spiking bp to be able to go home.
The transplant at this point has been put on hold, he might have to start at the bottom of the list again but, there is a difference of opinions as of today between nepherologists as to the cause of the bp spiking and so they will be meeting about this decision this week aparantely.
It has been a very trying and scarry week to say the least. He is doing well now though, thank heavens to many many prayers. We appreciate your support and love so much.
Savana is doing pretty good. I talked her into coming home at night the first two days but then nurses werent checking his blood sugars and giving him his medications on time etc and she wouldnt leave him after that. She told me that yesterday he was watching the football game and doing the happy dance (literally) because his team was winning and was wishing she had a video camera of him shaking his tushy...He is back to his spunky self and making sure that the staff knows he wants to go home so that is a good sign.
There was no permanent damage to the seizures, luck again, but for a while he did loose some balance, eye hand coordination and was a bit slow soaking in things. now he seems fine which is so unreal to me after seeing him the beginning of the week.
I will keep you posted as much as I can.